Do you find it odd that the word "cancer" and "cancel" seem so alike?
We had an appointment to see an endocrinologist today, in Lincoln.
Dad canceled the appointment.
Tomorrow is his birthday. I don't know if that is the main reason he wanted to cancel but I'm thinking it is.
It's hard to believe that 14 months ago we were just begining this journey.
We've been through 33 radiation treatments, 4 "cycles" of Taxol/Carboplatinum, at least 5 "cycles" of Taxotere and we continue with monthly Zymeta infusions(for hypercalcemia).
Dad has random occasional mid left "rib" pain for which he takes Darvocet with relief. Maybe 0-2 times a day. He continues to fight lower leg edema and is on 80 mg of Lasix and 50mg Aldactone (which he occasionally halves the dose of both depending on how he feels. He no longer uses any O2 at all. Very rarely (maybe 1 time a month) uses a TJN (twin jet nebulizer) treatment. He gets little to no activity for reasons mom and I don't understand. He has no appetite. He has pain in the ends of his big toes. He doensn't really seem short of breath at all. He hac occasional constipation. The skin of his lower legs is dry and flaky from the edema that comes and goes.
He is smoking again.
We don't know what is next for sure. We will go to Lincoln next Wednesday for the appointment with the endocrinologist. Dad is scheduled for a CT scan this month to check the lung tumor area.
Right now the oncoligst calls Dad cancer free. We are just dealing with all the other problems that go along with the diagnosis of cancer.
I think there should be a 12 step program for being diagnosed with cancer. You walk into a room...you say, Hi I'm _____ and I have lung cancer. When I was 12 I had my first cigarette. It was love at first cough. blah blah blah
Once labeled a cancer person always a cancer person. People put their eyes on you and wonder...how long before the disintegration...
People ask constantly..."How is so and so??" and stating "Well so and so, you look so good!", hanging on the edge of their seat, waiting to nod in pity while turning to their friends and saying, "Doesn't so and so look terrible?".